April 17, 2012 4 Comments
(Interview with Author Eileen-Riley Hall)
High school English teacher and mom Eileen Riley-Hall co’ taught autistic children in college summer camp and has worked with special needs students for over 25 years, yet she had never suspected her own daughters’ diagnoses of autism spectrum disorder (ASD). Upon discovery of both girls’ diagnoses, she knew her life had drastically changed.
The New York native Riley-Hall, rummaged store bookshelves for answers—something that would reassure her it would be okay. She only found overwhelming clinical books and discouraging doom and gloom books, which left her dissatisfied. After researching the disorder and learning which therapies worked for her, Eileen began to jot down her findings. She learned that the diagnosis isn’t a prophecy; Autistic children can go on living normal and fulfilling lives.
She committed herself to the goal of writing her own book in hopes that it would give support to parents in similar situations. She has done just that with her recently released book, Parenting Girls on the Autism Spectrum: Overcoming the Challenges and Celebrating the Gifts.
“One day, I went to a seminar at Albany Center for Autism and Related Disabilities,” said Riley-Hall in an interview. “There, I met clinical psychologist Shana Nichols, PhD who told me to e-mail her my manuscript. She sent it to her publishing company, Jessica Kingsley Publishers, and they liked it.”
Recently interviewed by anchor Stephanie Grady of FOX23 News, Riley-Hall describes her story of parenting girls on the autism spectrum given that the experience with ASD is much different from that of their male counterparts. Her youngest daughter, Caroline Grace, was diagnosed with autism at two years old, and Elizabeth Anne, Lizzie, was diagnosed at five years old with pervasive developmental disorder (PDD), now reclassified as Asperger’s syndrome (AS).
“My first thoughts were that my children would be incapable of doing things that other children could do,” said Riley-Hall. Parenting special needs children, as Riley puts it, can leave parents feeling defeated. The doctor said Caroline had severe cognitive impairments and a below average IQ at three years old. Now at 13, Caroline displays a great deal of intelligence. Musical Theatre is one of her favorites in school; she plays the Trumpet and delights in musical therapy. She is also tackling school spelling bees and seventh grade long division. Caroline strikes their mom as a sweet girl, but her mom worries about her ability to live independently as an adult. Nevertheless, Riley-Hall remains optimistic. “It appears at this point, she will always need some kind of supervision. But she has taught me that anything is possible, so we keep trying and hoping,” said Riley.
Her children have always been a part of the general education classroom. “Inclusion is not just advantageous, it’s necessary,” says Riley-Hall in her book. Taking part in mainstream education helps autistic children develop social skills from their peers, which they wouldn’t have ordinarily developed in therapy. Finding the proper educational support from teachers and modifying the curriculum if necessary is imperative. Most importantly, the best way to help children reach their highest potential as well as uncover their gifts is by accepting the children for who they are. “Autism is a part of who my children are. I believe in helping them in the area of education and giving them unconditional love,” the Author said.
Parenting Girls on the Autism Spectrum gives readers a glimpse into the autistic mind, ironing out common misconceptions associated with the disorder—one of those misconceptions is that autistic children are detached.
“That’s not true,” explains Riley-Hall. “Autism is a communication disorder; autistic people feel just as many emotions as we do. They are capable of empathy. They may be slower to understand what’s going on in the world around them, but they are much more aware of what’s going on around them than we think. Always talk about them hopefully because chances are that they understand a lot more than they can communicate. They are connected to people and they feel real emotions.”
The Author says Caroline had a speech delay, but she recalls moments from her toddler years in which Riley-Hall had thought she was unaware. In their baby years, Lizzie and Caroline’s personalities were like night and day. A six pound one ounce baby Lizzie would often stare skeptically, while Caroline was so independent and energetic that she would climb like an acrobat–all the characteristics of ordinary children. She also guides parents through adolescent years, covering treatments and interventions, how to handle bullying, hygiene, and social problems. She writes a section on early symptoms and causes, a hotly debated topic. She also warns parents of the common mistake of treating children on an impulse, such as seeking Internet therapies. “Parents have to be cautious, so they don’t do anything risky. That’s why it’s important to have a good relationship with your pediatrician,” said Riley-Hall.
Parenting Girls on the Autism Spectrum can be recognized as more than just the common Autism resource or clinical book. The author integrates helpful passages and optimistic author quotes for parents instead of proving autism to be just another formidable diagnosis. Each chapter closes with a message for readers to turn to when they’re looking for comfort as she once did in learning of her girl’s diagnoses. She quickly learned that all autistic children are different and wishes everyone had a broader understanding of the variety of people who can contribute to the world. “Just because someone has special needs, doesn’t mean that they can’t contribute to the world around them,” says Riley-Hall. “We aren’t at a place of recognizing autistic people as whole people.” Her advice to other parents is:
“Don’t give up hope. Autistic children can do extraordinary things. Keep giving them opportunities to develop and try new things. Life will be different, but it can still be wonderful. She also adds: “God can do amazing things; faith has a lot to do with it.”
Related websites: Autism Speaks